Through fear or ignorance, members of the public may shun, stare at or ask personal questions of individuals with different health conditions. This behavior, which can be summarized as "stigma", causes isolation, humiliation, and even avoidance of seeking medical help. The Simon Foundation for Continence is launching a renewed campaign to end stigma surrounding health conditions. We are conducting a survey to identify medical conditions with the greatest stigma. Your responses to this survey will be used to develop the most effective campaign. Please help us to lessen the stigma associated with medical conditions by taking our short anonymous survey at https://www.surveymonkey.com/s/simonvstigmapro1
Exceptional Governor of the Year Award Jun 14, 2014
Presentation of the Exceptional Parent's "Exceptional Governor of the Year Award" presented to Gov Steven Beshear of Kentucky by EP Magazine Editor in Chief Dr. Rick Rader.
Dare to Dream Jun 10, 2014
Watch this inspiring and moving video created by a senior at Monroe Township High school called Dare to Dream!
PBATS announces the PLAY campaign Jun 9, 2014In 2002, EP launched Disability Awareness Night with major and minor league baseball teams and supports sports-related endeavors of organizations in the special needs community. EP was present during PBATS recent announcement of the PLAY campaign partnership with the ARC. READ MORE
Inspiring: The Latkovski Sisters Mar 6, 2014Every once in a while I see a video that amazes me and brings a giant smile to my face. This little video of two sisters...The Latkovski Sisters...is just such a video. Not only is it inspiring but it teaches us a lesson of just how much can be achieved with persistence, perseverance and dedication even in the face of challenges from one's disability. I hope you take the time to watch this. READ MORE
NEW FACT SHEETS FOR THE NATIONAL DISABILITY NAVIGATOR RESOURCE COLLABORATIVE (NDNRC):
"Getting and Using Health Plan Evidence of Coverage" &"Using Health Plan Customer Service"
The American Association on Health and Disability (AAHD) is pleased to announce the publication of two new fact sheets for the National Disability Navigator Resource Collaborative (NDNRC). "Getting and Using Health Plan Evidence of Coverage" is intended to help navigators answer specific questions that people with disabilities might ask about getting and using a health plans' evidence of coverage documents. The fact sheet and 1 page executive summary can be found here: http://www.nationaldisabilitynavigator.org/ndnrc-materials/fact-sheets/fact-sheet-2/. "Using Health Plan Customer Service" is designed to help navigators answer specific questions that people with disabilities might ask about the role of health plan customer services. This fact sheet and one page executive summary can be found here: http://www.nationaldisabilitynavigator.org/ndnrc-materials/fact-sheets/fact-sheet-3/.
The Presidents's Message 2014 Jan 11, 2014A Time for Thanks and Maybe a Time to Pray
By Joseph M. Valenzano, Jr.
As we say goodbye to 2013 and welcome in a New Year, I wanted to take a moment to tell each of you how grateful I am for the opportunity to work and be a part of the special needs community. While it has always been the goal of Exceptional Parent (EP Magazine) to provide useful, pragmatic information to help you with the challenging, sometimes daunting task of caring for loved ones with chronic lifelong disorders and special needs, the truth of the matter is that I, and all of us at EP, have learned much from each of you every single day. READ MORE
The Down syndrome Association of Atlanta (DSAA) Honors Frank J. Murphy with the Lifetime Achievement Award Oct 3, 2013Frank J. Murphy was honored in September with the Lifetime Achievement Award by the Down syndrome Association of Atlanta (DSAA). The DSAA also recognized volunteers, supporters, and community heroes during the 2nd Annual Buddy Breakfast at the beautiful City Club of Buckhead. Exceptional Parent (EP) Magazine was represented by Dr. Rick Rader, this publication's Editor in Chief, at the event. READ MORE
ON THE PASSING OF A FRIEND AND VALUED COLLEAGUE Jun 25, 2013EP's James P. McGinnis ("Jim"): 1953-2013
It is with profound sadness that the management and staff of Exceptional Parent Magazine (EP) announce the passing of Jim McGinnis, Executive Vice President Operations and Chief Financial Officer. Jim was a man of great character and integrity who approached his duties with passion, dedication and commitment. He had a work ethic second to none. He was, by any yardstick, someone to look up to and someone fiercely loyal to the principles upon which our company was founded. READ MORE
EP Magazine's very own Joe Valenzano was interviewed on June 6th by the Web-based blog talk radio program, American Italian Radio. For about an hour that evening, hosts Sal Lifrieri and Don Mazzella had a lively conversation with Valenzano. He discussed his passions—EP (Exceptional Parent) Magazine, his various teaching stints, growing up in New York City in the 1950s, his most cherished Italian-American values and, of course, family and friends. Valenzano is this year's UNICO National Awardee.
Listen to the archived program by clicking on the following link: http://www.blogtalkradio.com/americanitalianradio/2013/06/07/american-italian-radio
EP Joins Hands with Groups Expressing Concern about the Impact of Continued Cuts to the NIH on Medical Research Feb 7, 2013As the leading publication in the special needs arena, one of EP's core values is the promotion and communication of new and significant biomedical research. It is this body of research that contributes to the quality of life for our readers and supporters. When we learn that budget cuts for NIH research are being considered and implemented, it behooves us to express our concerns. This letter that EP has signed—alongside many national organizations and associations involved in healthcare— demonstrates our commitment to seeing the portals of research remain supported. READ MORE
The National Center on Birth Defects and Developmental Disabilities: 2013 Fellowship and Research Opportunities Jan 29, 2013The National Center on Birth Defects and Developmental Disabilities (NCBDDD) at the CDC is pleased to announce the availability fellowship and research opportunities for 2013.
Information about the fellowship and research opportunities are available on the newly created Disability Research and Dissemination Center (DRC) website at www.disabilityresearchcenter.com
Both fellowship and research submissions are on-line submissions handled exclusively through the DRDC website. READ MORE
American Association on Health and Disability Accepting Applications for Scholarship Program Oct 28, 2012AAHD (American Association on Health and Disability) is accepting applications for the AAHD Scholarship Program (2012-2013) which supports students with disabilities pursuing higher education in a field related to disability and health. READ MORE
Statement of Principle on the Withdrawal of Nutrition from Persons with Neurodevelopmental Disorders and Intellectual Disabilities Jun 17, 2012The mother of two adult children, one male and one female, with Sanfilippo syndrome – a devastating neurodevelopmental disorder with no known cure – was a guest on the Dr. Phil show on April 13, 2012. READ MORE
In 2004, a U.S. Marine serving in Iraq was wounded in Fallujah and later medically retired because of his injuries. In 2009, the same Marine was told that his son had been diagnosed with autism. But when he sought medical coverage for his son’s behavioral therapy through the military’s TRICARE healthcare system, he was denied. READ MORE
Note from the Editor in Chief Dec 31, 2010The Centers for Disease Control and Prevention (CDC) is considering down grading their oral health activities by transferring this unit to another department. This does not bode well for "at risk and vulnerable" populations. The impact of the oral-systemic health connection is well known and has added significance for individuals with significant disabilities. I urge readers of Exceptional Parent Magazine, advocates, parents, health providers, policy makers and individuals with disabilities to write to CDC officials, state legislators and disability organizations to voice their concern and petition for a prominent footprint for oral healthcare. READ MORE
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